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May 16, 2023; 100 (20) Special Article

Neurologic Care of Forcibly Displaced Persons

Emerging Issues in Neurology

Farrah J. Mateen, Ibrahem Hanafi, Gretchen L. Birbeck, Altaf Saadi, Erich Schmutzhard, Jo M. Wilmshurst, Heather Silsbee, Lyell K. Jones, on behalf of the AAN Quality Committee
First published March 1, 2023, DOI: https://doi.org/10.1212/WNL.0000000000206857
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Article Information

vol. 100 no. 20 962-969
DOI: 
https://doi.org/10.1212/WNL.0000000000206857
PubMed: 
36859408
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
0028-3878
Online ISSN: 
1526-632X
History: 
  • Received September 21, 2022
  • Accepted in final form December 7, 2022
  • First Published March 1, 2023.

Article Versions

Copyright & Usage: 
© 2023 American Academy of Neurology

Author Disclosures

    1. Farrah J. Mateen, MD, PhD,
    2. Ibrahem Hanafi, MD, MSc,
    3. Gretchen L. Birbeck, MD, MPH, DTMH,
    4. Altaf Saadi, MD, MSc,
    5. Erich Schmutzhard, MD, PhD,
    6. Jo M. Wilmshurst, MB, BS, MRCPaed, FCPaed, MD,
    7. Heather Silsbee,
    8. Lyell K. Jones Jr, MD;
    9. on behalf of the AAN Quality Committee
  1. Farrah J. Mateen, MD, PhD,
    2. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. Dr. Mateen serves as a coeditor for Without Borders, a website of Neurology.

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. I have received consulting fees from Alexion, Horizon Therapeutics, Genentech, TG Therapeutics, and EMD Serono unrelated to this work.

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. Research funding to my institution from Genentech, EMD Serono, Biogen, unrelated to this work.

    Research Support, Government Entities:

    1. Research funding from the National Institutes of Health and U.S. Department of State, unrelated to this work.

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Research funding in the form of investigator-initiated grants from the Sumaira Foundation, unrelated to this work.

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. I hold shares in the company BrainCapture.

    Legal Proceedings:

    1. NONE

  2. Ibrahem Hanafi, MD, MSc,
    3. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. I am supported by a scholarship from the German Academic Exchange Service (Deutscher Akademischer Austauschdienst; DAAD) unrelated to this project.

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  3. Gretchen L. Birbeck, MD, MPH, DTMH,
    4. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NIHR01NS09403709/15/15-08/30/21Cohort of HIV-Associated Seizures and Epilepsy in Zambia (CHASE): Scale up and expansion informed by R21 Findings. Role: Co-PINIHR21MH122238 09/03/20-08/31/22 Collaborative HIV Investigations of Antiretroviral Neuropsychiatric Toxicities in Zambia (CHANTZ)Role: Co-PINIHR01NS11105703/15/20-01/31/25 An MRI Ancillary Grant on a Malaria Fever Control RCTRole: Co-PINIHR01NS102176 09/15/17-09/30/22 Aggressive Antipyretics for fever Control in CNS Malaria: A Randomized Controlled Trial AssessingAntipyretic Efficacy and Parasite ClearanceRole: PIR35NS122265 04/01/21-31/03/29 Global Research Endeavors to Advance Treatment of Neurological Disorders in AfricaRole: PI

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. My husband has provided expert testimony for various legalfirms. A full list is available uponrequest. None are related to this work in any way.

  4. Altaf Saadi, MD, MSc,
    5. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. 1) National Science Foundation, Grant number 2116859, Co-PI, 2021-20242) National Institute of Health, R21MD017499, MPI, 2022-20243) National Institute of Health, K23NS128164, PI, 2022-2027

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. 1) Russel Sage Foundation, 2021-20232) American Academy of Neurology, 2021-20233) Rappaport Foundation, 2020-2021

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Erich Schmutzhard, MD, PhD,
    6. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Jo M. Wilmshurst, MB, BS, MRCPaed, FCPaed, MD,
    7. Scientific Advisory Boards:

    1. National (South African) advisory board for Sanofi and Novartis

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. Epilepsia, associate editor, 2013-currentFrontiers in Neurology Paediatric Neurology sub-section, Chief Editor, 2019 - current

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. National Research Foundation for South Africa

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  7. Heather Silsbee,
    8. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. Employee of the American Academy of Neurology

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  8. Lyell K. Jones Jr, MD;
    9. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. Continuum: Lifelong Learning in Neurology, Editor-in-Chief, 2023 to presentNeurology: Clinical Practice, Editorial Board, 2016 to present

    Patents:

    1. NONE

    Publishing Royalties:

    1. Mayo Clinic Neurology Board Review book, Oxford UniversityPress, 2015

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. Voluntary member of the AANI Board of DirectorsVoluntary member of the Mayo Clinic ACO Board of DirectorsVoluntary chair of the American Academy of NeurologyQuality CommitteeTeaching honoraria from the American Academy of Neurology

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  9. on behalf of the AAN Quality Committee
  1. From the Department of Neurology (F.J.M.), Massachusetts General Hospital, Boston; Department of Neurology (I.H.), University Hospital of Würzburg, Germany; Department of Neurology (G.L.B.), University of Rochester Medical Center, NY; Department of Neurology (A.S.), Massachusetts General Hospital, Boston; Department of Neurology (E.S.), Medical University Innsbruck, Austria; Department of Paediatric Neurology (J.M.W.), University of Cape Town, South Africa; American Academy of Neurology (H.S.), Minneapolis, MN; and Department of Neurology (L.K.J.), Mayo Clinic, Rochester, MN.
  1. Correspondence
    American Academy of Neurology quality{at}aan.com
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