The ALIGN Framework
A Parent-Informed Approach to Prognostic Communication for Infants With Neurologic Conditions
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Article Information
- Received June 16, 2022
- Accepted in final form October 7, 2022
- First Published December 1, 2022.
Article Versions
- Previous version (December 1, 2022 - 12:45).
- You are viewing the most recent version of this article.
Author Disclosures
- Monica E. Lemmon, MD,
- Mary C. Barks, MA,
- Simran Bansal,
- Sarah Bernstein, MD, MHA,
- Erica C. Kaye, MD, MPH,
- Hannah C. Glass, MD,
- Peter A. Ubel, MD,
- Debra Brandon, PhD and
- Kathryn I. Pollak, PhD
- Monica E. Lemmon, MD,
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(1) National Institute of Neurological Disorders and Stroke of the National Institutes of Health, K12NS098482, PI, 2018-2020 (2) Patient Centered Outcomes Research Institute, Site PI, 2016-2020(3) National Institute of Neurological Disorders and Stroke of the National Institutes of Health, K23K23NS116453, PI, 2020-2021(4) National Institute of Neurological Disorders and Stroke of the National Institutes of Health, R01NS111166, ProjectSite PI, 2020 - 2025(5) National Institute of Neurological Disorders and Stroke of the National Institutes of Health, R01NS124051, Site PI, 2022 - 2027
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BAND FoundationDoris Duke Charitable FoundationDerfner FoundationNational Palliative Care Research Center
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- Mary C. Barks, MA,
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- Simran Bansal,
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- Sarah Bernstein, MD, MHA,
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- Erica C. Kaye, MD, MPH,
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Career Development Award from the National Palliative Care Research Center (2019-2022)
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- Hannah C. Glass, MD,
(1) Non profit entity (NIH)
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Pediatric NeurologyEditorial board2013-present
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PCORI CER-1507-31187 mPI 2017-2020NIH/NINDS R01NS104322 PI 2018-2022NIH/NINDS R01NS111166 mPI 2020-2024NIH/NINDS R01NS124051 mPI 2022-2027
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Cerebral Palsy AllianceThe Marcus Program in Precision Medicine Innovation (MPPMI)
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Consultant for various legal firms
- Peter A. Ubel, MD,
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- Debra Brandon, PhD and
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Advances in Neonatal Care, Co-Editor in Chief, 2012 to present
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- Kathryn I. Pollak, PhD
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Nicotine Tobacco Research, Associate Editor 2017-present
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- From the Departments of Pediatrics (M.E.L., M.C.B., S. Bansal, S. Bernstein), Population Health Sciences (M.E.L., K.I.P.), Duke University School of Medicine, Durham, NC; University of Utah School of Medicine (S. Bernstein), Salt Lack City; Department of Oncology (E.C.K.), St. Jude Children's Research Hospital, Memphis, TN; Departments of Neurology and Pediatrics (E.C.K.), UCSF Benioff Children's Hospital and Department of Epidemiology & Biostatistics (H.C.G.), University of California, San Francisco; Fuqua School of Business and Sanford School of Public Policy (P.A.U.), Duke University, Durham; and Duke University School of Nursing (D.B.), Durham; Cancer Prevention and Control (KIP), Duke Cancer Institute, Durham, NC.
- Correspondence
Dr. Lemmon monica.lemmon{at}duke.edu
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