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March 12, 2013; 80 (11 Supplement 3) NIH Toolbox for assessment of neurological and behavioral function

Input on NIH Toolbox inclusion criteria

Surveying the end-user community

Cindy J. Nowinski, David Victorson, Scott M. Debb, Richard C. Gershon
First published March 11, 2013, DOI: https://doi.org/10.1212/WNL.0b013e3182872e4c
Cindy J. Nowinski
From the Department of Medical Social Sciences (C.J.N., D.V., R.C.G.), Northwestern University Feinberg School of Medicine, Chicago; and FACIT–Functional Assessment of Chronic Illness Therapy (S.M.D.), Elmhurst, IL.
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David Victorson
From the Department of Medical Social Sciences (C.J.N., D.V., R.C.G.), Northwestern University Feinberg School of Medicine, Chicago; and FACIT–Functional Assessment of Chronic Illness Therapy (S.M.D.), Elmhurst, IL.
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Scott M. Debb
From the Department of Medical Social Sciences (C.J.N., D.V., R.C.G.), Northwestern University Feinberg School of Medicine, Chicago; and FACIT–Functional Assessment of Chronic Illness Therapy (S.M.D.), Elmhurst, IL.
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Richard C. Gershon
From the Department of Medical Social Sciences (C.J.N., D.V., R.C.G.), Northwestern University Feinberg School of Medicine, Chicago; and FACIT–Functional Assessment of Chronic Illness Therapy (S.M.D.), Elmhurst, IL.
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Citation
Input on NIH Toolbox inclusion criteria
Surveying the end-user community
Cindy J. Nowinski, David Victorson, Scott M. Debb, Richard C. Gershon
Neurology Mar 2013, 80 (11 Supplement 3) S7-S12; DOI: 10.1212/WNL.0b013e3182872e4c

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Abstract

Objective: The NIH Toolbox is intended to be responsive to the needs of investigators evaluating neurologic and behavioral function in diverse settings. Early phases of the project involved gathering information and input from potential end users.

Methods: Information was collected through literature and instrument database reviews, requests for information, consensus meetings, and expert interviews and integrated into the NIH Toolbox development process in an iterative manner.

Results: Criteria for instrument inclusion, subdomains to be assessed, and preferences regarding instrument cost and length were obtained. Existing measures suitable for inclusion in the NIH Toolbox and areas requiring new measure development were identified.

Conclusion: The NIH Toolbox was developed with explicit input from potential end users regarding many of its key features.

GLOSSARY

RFI=
request for information

Footnotes

  • Go to Neurology.org for full disclosures. Funding information and disclosures deemed relevant by the authors, if any, are provided at the end of the article.

  • Received June 6, 2012.
  • Accepted July 6, 2012.
  • © 2013 American Academy of Neurology
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