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July 04, 2017; 89 (1) Article

Long-term unmet needs and associated factors in stroke or TIA survivors

An observational study

Muideen T. Olaiya, Dominique A. Cadilhac, Joosup Kim, Mark R. Nelson, Velandai K. Srikanth, Nadine E. Andrew, Christopher F. Bladin, Richard P. Gerraty, Sharyn M. Fitzgerald, Thanh Phan, Judith Frayne, Amanda G. Thrift
First published May 31, 2017, DOI: https://doi.org/10.1212/WNL.0000000000004063
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Article Information

vol. 89 no. 1 68-75
DOI: 
https://doi.org/10.1212/WNL.0000000000004063
PubMed: 
28566545
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
0028-3878
Online ISSN: 
1526-632X
History: 
  • Received December 4, 2016
  • Accepted in final form April 3, 2017
  • First Published May 31, 2017.

Article Versions

Copyright & Usage: 
© 2017 American Academy of Neurology

Author Disclosures

    1. Muideen T. Olaiya, MSc,
    2. Dominique A. Cadilhac, PhD,
    3. Joosup Kim, PhD,
    4. Mark R. Nelson, PhD,
    5. Velandai K. Srikanth, PhD,
    6. Nadine E. Andrew, PhD,
    7. Christopher F. Bladin, PhD, FRACP,
    8. Richard P. Gerraty, MD, FRACP,
    9. Sharyn M. Fitzgerald, PhD,
    10. Thanh Phan, PhD,
    11. Judith Frayne, MBBS, FRACP and
    12. Amanda G. Thrift, PhD
    13. On behalf of the STANDFIRM (Shared Team Approach Between Nurses and Doctors for Improved Risk Factor Management) Investigators
  1. Muideen T. Olaiya, MSc,
    2. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  2. Dominique A. Cadilhac, PhD,
    3. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. 1) Stroke, editorial advisory board member, 2017 2) BMC Neurology ?Cerebrovascular disease and stroke? section, Associate Editor, May 2015 3) International Journal of Stroke, Editorial board member (honorary), appointed April 2013 4) Founding honorary editorial board for online journal ?Clinical Audit?, Dove Medical Press appointed 2009 5) World Journal of Hypertension (Editorial board member honorary) Editorial Board Member ID Number: (00607651) (11/02/2011; renewed 04/01/2016)

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. Boehringer Ingelheim (restricted educational grant) Allergan Australia (restricted educational grant) Stryker (restricted educational grant)

    Research Support, Government Entities:

    1. National Health Medical Research Council (ID 1063761): Career Development Research Fellowship Population Health 2014-2017 Queensland Health, Principal Investigator 2012-2014 NSW Health, Principal Investigator NSW Stroke Audit Program, 2014-2016 (unrelated) NHMRC (APP1077898) chief investigator, project grant (unrelated) 2015-2019 NHMRC (APP1079179) Principal Investigator project grant 2015-2019 NHMRC (APP1083010) Associate Investigator project grant (unrelated) 2015-2018 Victorian Government, Data Custodian Australian Stroke Clinical Registry, 2014-2017 National Stroke Foundation, Principal Investigator 2012- 2015 NHMRC (APP1024812), chief investigator project grant (unrelated), 2012-2017 NHMRC (APP1027794) chief investigator project grant (unrelated), 2012-2017 Health and Hospital Fund (Commonwealth Government, Australia), 2013-2018

    Research Support, Academic Entities:

    1. Florey Institute of Neuroscience and Mental Health

    Research Support, Foundations and Societies:

    1. National Heart Foundation Future Leader Fellowship (ID 100066) (co-funded)(see government entities entry)

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  3. Joosup Kim, PhD,
    4. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Stroke Foundation (SPG11)

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  4. Mark R. Nelson, PhD,
    5. Scientific Advisory Boards:

    1. (1) Amgen Australia Pty Ltd

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Velandai K. Srikanth, PhD,
    6. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. (1) International Journal of Stroke, 2013, (2) Frontiers of Neurology, 2014

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. National Health and Medical Research Council of Australia, grants 403000, 491109, 606544' years 2006 till present.

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Nadine E. Andrew, PhD,
    7. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. National Health and Medical Research Council (NHMRC): Early Career Fellowship Grant number:1072053

    Research Support, Academic Entities:

    1. (1) Monash University, $50,000 (research grant)

    Research Support, Foundations and Societies:

    1. (1) 2014 National Stroke Foundation, $20,000 (research grant) (2) 2016 Ian Potter Foundation, $100,000 (research grant) (3) 2016 Stroke Foundation, $17,600 (program evaluation) (4) 2017 Stroke Foundation, $48,754 (research grant) (5) 2017 Heart Foundation, $74,957(research grant)

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  7. Christopher F. Bladin, PhD, FRACP,
    8. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for travel or speaker honoraria:

    1. Boehringer Ingelheim - educational meeting.

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. Australian Government - 5yrs stroke telemedicine funding - no grant number.

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  8. Richard P. Gerraty, MD, FRACP,
    9. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. Journal of Clinical Neuroscince, Elsevier. Neurology Co-Editor 2011-2015

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. National Health and Medical Research Council Australia (NHMRC) for two large multi-invetigator grants for stroke projects. No moneys direct to me or my department.

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Grant for $AUD169,000 for a study of acute vertigo from Perpetual Trustees.

    Stock/Stock Options/Board of Directors Compensation:

    1. Dividends from shares in CSL Limited, and Australian Stock Exchange listed company. This is the only health related stock I own. I have multiple other shares of no relevance.

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  9. Sharyn M. Fitzgerald, PhD,
    10. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  10. Thanh Phan, PhD,
    11. Scientific Advisory Boards:

    1. Advisory Board for Genzyme

    Gifts:

    1. NONE

    Funding for travel or speaker honoraria:

    1. Speaker honoraria for Genzyme, Boehringer Ingelheim, Bayer, Pfizer, BMS

    Editorial Boards:

    1. Associate Editor, Frontiers in Neurology (Stroke subsection) and PLOS ONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. Advisory Board for Genzyme

    Speakers' Bureaus:

    1. Genzyme; Bayer; Boehringer Ingelheim; Pfizer, BMS

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  11. Judith Frayne, MBBS, FRACP and
    12. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  12. Amanda G. Thrift, PhD
    13. Scientific Advisory Boards:

    1. (1) National Health & Medical Research Council (Australia), Research Committee (2) Stroke Foundation, Research Advisory Committee (3) Family-led rehabilitation trial after stroke in India, Data Safety Monitoring Committee

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. (1) Stroke, editorial advisory board, 2009-2016 (2) Stroke, co-editor of the Health Policy and Outcomes section, 2010-2016 (3) International Journal of Stroke, editorial advisory board, 2005-2016 (4) Neuroepidemiology, editorial advisory board, 2007-2016

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other activities:

    1. (1) Stroke Foundation (Australia), Board Member

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. (1) National Health and Medical Research Council (Australia), 586605, Chief Investigator, 2010-2014 (2) National Health and Medical Research Council (Australia), 1040030, Chief Investigator, 2012-2015 (3) National Health and Medical Research Council (Australia), 1041401, Chief Investigator, 2013-2016 (4) National Health and Medical Research Council (Australia), 1042600, Chief Investigator, 2013-2017 (5) National Health and Medical Research Council (Australia), 1034415, Chief Investigator, 2012-2015 (6) National Health and Medical Research Council (Australia), 1104528, Chief Investigator, 2016-2019 (7) National Health and Medical Research Council (Australia), 1050672, Chief Investigator, 2013-2015 (8) National Health and Medical Research Council (Australia), 1023650, Chief Investigator, 2012-2015 (9) National Health and Medical Research Council (Australia), 1024575, Chief Investigator, 2012-2015 (10) European Commission: 7th Framework, SEP-210080487, Chief Investigator, 2014-2017 (11) Australian Research Council, DP140103045, Chief Investigator, 2014-2016

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. (1) ANZ Trustees, Chief Investigator, No identifier, 2014

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  1. From Stroke and Ageing Research (M.T.O., D.A.C., J.K., V.K.S., N.E.A., T.P., A.G.T.), Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Clayton; Stroke Division (D.A.C., J.K., N.E.A.), Florey Institute of Neuroscience and Mental Health, Heidelberg; Menzies Institute for Medical Research (M.R.N., V.K.S.), Hobart; Department of Epidemiology and Preventive Medicine (M.R.N., S.M.F.), Monash University, Melbourne; School of Medicine (M.R.N.), University of Tasmania, Hobart; Department of Neurosciences (C.F.B.), Box Hill Hospital; Department of Medicine (R.P.G.), Epworth Healthcare, Monash University, Richmond; and Department of Neurology (J.F.), Alfred Hospital, Melbourne, Australia.
  1. Correspondence to Dr. Thrift: amanda.thrift{at}monash.edu
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