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May 12, 2020; 94 (19) Article

Patients' views on the ethical challenges of early Parkinson disease detection

Eva Schaeffer, Annette Rogge, Katharina Nieding, Vera Helmker, Christa Letsch, Björn Hauptmann, Daniela Berg
First published April 14, 2020, DOI: https://doi.org/10.1212/WNL.0000000000009400
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Article Information

vol. 94 no. 19 e2037-e2044
DOI: 
https://doi.org/10.1212/WNL.0000000000009400
PubMed: 
32291296
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
0028-3878
Online ISSN: 
1526-632X
History: 
  • Received August 23, 2019
  • Accepted in final form November 19, 2019
  • First Published April 14, 2020.

Article Versions

Copyright & Usage: 
© 2020 American Academy of Neurology

Author Disclosures

    1. Eva Schaeffer, MD*,
    2. Annette Rogge, MD*,
    3. Katharina Nieding,
    4. Vera Helmker,
    5. Christa Letsch,
    6. Björn Hauptmann, MD and
    7. Daniela Berg, MD
  1. Eva Schaeffer, MD*,
    2. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for travel or speaker honoraria:

    1. Speaker’s honoraria from Bayer Vital GmbH and Novartis.

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  2. Annette Rogge, MD*,
    3. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  3. Katharina Nieding,
    4. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  4. Vera Helmker,
    5. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Christa Letsch,
    6. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Björn Hauptmann, MD and
    7. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  7. Daniela Berg, MD
    8. Scientific Advisory Boards:

    1. (1) Biogen, (2) BIAL, (3) Lundbeck, (4) UCB Pharma GmbH

    Gifts:

    1. NONE

    Funding for travel or speaker honoraria:

    1. (1)Desitin, travel and speaker honoraria (2)Pfizer, travel (3)Lundbeck, travel and speaker honoraria (4)Boehringer Ingelheim Pharma GmbH, travel (5)Coppenrath Stiftung, travel (6)Grünenthal GmbH, travel (7)JPND Research, travel (8)Apothekenwirtschaftsdienst GmbH, travel and speaker honoraria (9) Asklepios Kliniken Hamburg GmbH, travel and speaker honoraria (10)Bayer Vital GmbH, travel and speaker honoraria (11)BIAl Deutschland GmbH, travel and speaker honoraria (12)J. Weser GmbH (Zambon), travel and spaeker honoraria (13)AbbVie Deutschland GmbH, travel and Speaker honoraria (14)TEVA GmbH, travel and Speaker honoraria (15)Dekanat der CAU, travel (16)Ärztekammer Schleswig-Holstein,travel and Speaker honoraria (17) Deutsche Parkinson Vereinigung (DPV), travel and Speaker honoraria (18)Jansen Neuroscience Network, travel and Speaker honoraria (19)Uniklinik RWTH Aachen, travel (20)Humanitas Research Hospital Mailand, travel (21)Universitätsmedizin Rostock, travel (22)Deutsche Gesellschaft für Neurologie (DGN), travel (23)Universitätsklinik Tübingen, travel (24)Aklepios-Klinik Altona, travel and Speaker honoraria (25)NDR-Fernsehen, travel and Speaker honoraria (26)Segeberger Kliniken, travel (27)Deutsche Parkinson Gesellschaft (DPG), travel (28)Scandinavian Movement Disorder Society, travel (29)International Parkinson and Movement Disorder Society, travel and speaker honoraria

    Editorial Boards:

    1. (1) DGNeurologie, Funding-Co-Editor, (2) Movement Disorders Clinical Practice Journal, Editorial Board, (3) Neurological Research and Practice, Editorial Board (4) Journal of Parkinsons's Disease, Associate Editor (5) Der Nervenarzt, Member of the Scientific Advisory Board

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. (1) Biogen (2) BIAL (3) Lundbeck (4) UCB Pharma GmbH

    Speakers' Bureaus:

    1. (1)AbbVie (2)Biogen (3)BIAL (4)Lundbeck (5)UCB Pharma GmbH

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. (1)Janssen Pharmaceutica N.V. (2)UCB Pharma GmbH (3)TEVA Pharma GmbH (4)Novartis Pharma GmbH (5)Lundbeck

    Research Support, Government Entities:

    1. (1)BMWi (2)EU

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. (1)Michael J.Fox Foundation (2)German Parkinson Disease Society (dPG) (3)Damp foundation

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  1. From the Department of Neurology (E.S., K.N., V.H., D.B.) and Institute of Experimental Medicine, Medical Ethics (A.R.), Christian-Albrechts-University of Kiel; Neurological Centre (C.L., B.H.), Hospital for Movement Disorders and Parkinson's Disease, Bad Segeberg; Department of Performance, Neuroscience, Therapy and Health (B.H.), MSH–Medical School Hamburg; Department of Neurodegeneration (D.B.), Hertie Institute for Clinical Brain Research, University of Tübingen, Germany.
  1. Correspondence
    Dr. Schaeffer eva.schaeffer{at}uksh.de
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