January 25, 2022; 98 (4) Special Article
Decisions With Patients and Families Regarding Aducanumab in Alzheimer Disease, With Recommendations for Consent
AAN Position Statement
View ORCID ProfileWinston Chiong, View ORCID ProfileBenjamin David Tolchin, View ORCID ProfileRichard J. Bonnie, View ORCID ProfileKatharina M. Busl, Salvador Cruz-Flores, View ORCID ProfileLeon G. Epstein, Ericka P. Greene, View ORCID ProfileJudy Illes, View ORCID ProfileMatthew Kirschen, Daniel G. Larriviere, View ORCID ProfileSneha Mantri, Michael A. Rubin, Barney J. Stern, View ORCID ProfileLynne P. Taylor, on behalf of the Ethics, Law, and Humanities Committee (a joint committee of the AAN, ANA, and CNS)
First published November 17, 2021, DOI: https://doi.org/10.1212/WNL.0000000000013053
Winston Chiong
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Benjamin David Tolchin
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Richard J. Bonnie
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Katharina M. Busl
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Salvador Cruz-Flores
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Leon G. Epstein
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Ericka P. Greene
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Judy Illes
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Matthew Kirschen
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Daniel G. Larriviere
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Sneha Mantri
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Michael A. Rubin
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Barney J. Stern
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Lynne P. Taylor
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
Decisions With Patients and Families Regarding Aducanumab in Alzheimer Disease, With Recommendations for Consent
AAN Position Statement
Winston Chiong, Benjamin David Tolchin, Richard J. Bonnie, Katharina M. Busl, Salvador Cruz-Flores, Leon G. Epstein, Ericka P. Greene, Judy Illes, Matthew Kirschen, Daniel G. Larriviere, Sneha Mantri, Michael A. Rubin, Barney J. Stern, Lynne P. Taylor, on behalf of the Ethics, Law, and Humanities Committee (a joint committee of the AAN, ANA, and CNS)
Neurology Jan 2022, 98 (4) 154-159; DOI: 10.1212/WNL.0000000000013053
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vol. 98 no. 4 154-159
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History:
- Received August 20, 2021
- Accepted in final form November 2, 2021
- First Published November 17, 2021.
Article Versions
- Previous version (November 17, 2021 - 12:45).
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© 2021 American Academy of Neurology
Author Disclosures
- Winston Chiong, MD, PhD,
- Benjamin David Tolchin, MD, MS,
- Richard J. Bonnie, LLB,
- Katharina M. Busl, MD, MS,
- Salvador Cruz-Flores, MD,
- Leon G. Epstein, MD,
- Ericka P. Greene, MD,
- Judy Illes, CM, PhD,
- Matthew Kirschen, MD, PhD,
- Daniel G. Larriviere, MD, JD,
- Sneha Mantri, MD,
- Michael A. Rubin, MD,
- Barney J. Stern, MD,
- Lynne P. Taylor, MD;
- on behalf of the Ethics, Law, and Humanities Committee (a joint committee of the AAN, ANA, and CNS)
- Winston Chiong, MD, PhD,
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(1) AAN Ethics, Law and Humanities Committee, travel and honoraria (2) NIH BRAIN Initiative NeuroEthics Working Group, travel and honoraria
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(1) UCSF Memory and Aging Center, clinical evaluation of patients with cognitive disorder, 10% effort
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(1) NIH, R01MH126997, multi-principal investigator, 2021-2025 (1) NIH, R01AG058817, principal investigator, 2018-2023 (2) NIH, R01MH114860, multi-principal investigator, 2017-2021 (3) NIH, R01AG022983, principal investigator, 2017-2022 (4) NIH, R01AG056715, co-investigator, 2017-2022 (5) NIH, RF1AG029577, co-investigator, 2019-2024
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- Benjamin David Tolchin, MD, MS,
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1) American Academy of Neurology, travel funding 2) International League Against Epilepsy, travel funding 3) Columbia University Medical Center, travel funding
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1) Department of Veterans Affairs, Veterans Health Administration, VISN1 Career Development Award PI: Benjamin Tolchin, MD, MS Project period: 10/01/2018 Â 9/30/2020 2) Department of Veterans Affairs, Veterans Health Administration, Pain Research, Informatics, Multimorbidities, and Education (PRIME) Center, Locally Initiated Project 96-037 PI: Benjamin Tolchin, MD, MS Project period: 04/01/2018 Â 03/31/2019
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C. G. Swebilius Trust: Swebilius Grant PI: Benjamin Tolchin, MD, MS Project period: 05/01/2018 Â 4/30/2020
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- Richard J. Bonnie, LLB,
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- Katharina M. Busl, MD, MS,
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Neurocritical Care On Call, Editorial Board, Member, since 2017; Neurocritical Care On Call, Editor-in-Chief, since 2020 Critical Care Explorations, Associate Editor, since 2020
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Guidepoint Techspert
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Honorarium, Guest Editor for Continuum Neurology
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- Salvador Cruz-Flores, MD,
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Galapagos Sunovion
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Lone Star Stroke Consortium through the University of Texas System
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- Leon G. Epstein, MD,
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Associate Editor Annals of Clinical and Translational Neurology (ANA)
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- Ericka P. Greene, MD,
Argenx Inc. ISIS FUS ALS
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Journal Reviewer for Mitochondrion
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Co-editor for Case files for Neurology McGraw Hill publication
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Speaker for Alexion Pharmaceuticals, Inc on indications for Soliris in Myasthenia Gravis Contracted Speaker for Spinraza in ALS (have not spoken) Speaker for Hizentra in CIDP on behalf of Grifols, Inc
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Endowed Chair support from philanthropic donations not related to publication
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- Judy Illes, CM, PhD,
All my Board work is pro bono. I am the Vice Chair of the CIHR Standing Committee on Ethics and of the Internal Advisory Board of INMHA. I am also an elected member of the Research Leaders Forum of the Michael Smith Foundation for Health Research. I serve on a number of editorial boards with no compensation or conflict of interest (please see list below).
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Canadian Journal of Bioethics, Editorial Board, current Journal of Law and the Biosciences, Editorial Board, current Frontiers - Ethics and Genetics, Editorial Board, on hold American Journal of Bioethics - Neuroscience, Senior Editorial Advisor
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I receive ongoing royalties on the following books edited by me: Illes, J. (Ed.) Neuroethics: Defining the Issues in Theory, Practice and Policy, Oxford University Press, Oxford, UK, 2006.Illes, J., Sahakian, B.J. (Eds.) Handbook of Neuroethics, Oxford University Press, Oxford, UK, 2011. Carter, A., Hall, W., Illes, J. (Eds.) Addiction Neuroethics, Elsevier Press, San Diego, CA, 2012. Di Pietro, N.C. and Illes, J. (Eds.) The Use and Overuse of Antipsychotics in Children and Youth, Elsevier, San Diego, 2015. Illes, J. (Ed.) Neuroethics: Anticipating the Future, Oxford University Press, Oxford, UK, July 2017. Illes, J. (Ed.) Series: Developments in Neuroethics and Biomedicine, Elsevier Press, San Diego (2017-2023),Vol 1-4 vol. 5 and 6 in preparation).
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NSERC NFRF Transformation grant Mend the Gap - A Transformative Biomaterials Platform for Spinal Cord Repair Sept 2021 Â Aug 2027 J. Madden (PI) J. llles and others (Co-PI) CIHR INMHA International Neuroethics Patent Initiative 1 February 2021 Â 30 January 2024 J. Illes (PI: Vancouver) T. Spranger (PI: Bonn) CIHR INMHA Canadian Brain Research Strategy Secretariat C June 2020 Â May 2025 Y. De Koninck and J. Illes (Co-PIs) CIHR and Canadian Cancer Society(Priority on Cannabis) Cannabis for Symptom Management in Children with Cancer: a Demonstration Project by the Canadian Childhood Cannabinoid Clinical Trials (C4T) Platform 1 April 2020 Â 30 May 2025 L. Kelly (PI) J. Illes (sub award PI @UBC) National Institutes of Health BRAIN Initiative on Neuroethics (RF1 # MH11780501) Informing Choice for Neurotechnological Innovation in Pediatric Epilepsy 1 September 2018 Â 31 August 2021 (extension through 2022) J. Illes (PI) $250,000 (CAD) 1 September 2018 Â 31 August 2021 (extension through 2022) J. Illes P.J. McDonald M. Connolly M. Harrison
CIHR INMHA in partnership with the European Fund for Neuro- science Research Psychiatric Neurosurgery  Ethical, Legal, and Societal Issues C $80,000 1 November 2015  31 October 2018 S. Muller, PI (Universitat-medizin Berlin, Germany) J. Illes (UBC Principal Investigator) University of Toronto (sub-contract) Pan-Canadian Neurotechnology Ethics Collaborative (PCNEC) NC $150,000 5 February 2018  4 February 2020
North Growth Foundation
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- Matthew Kirschen, MD, PhD,
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- Daniel G. Larriviere, MD, JD,
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- Sneha Mantri, MD,
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(1) Journal of General Internal Medicine, Associate Editor of Healing Arts, 2020-2021
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(1) Michael J Fox Foundation, (2) Deep Brain Innovations, LLC, (3) Grey Matter Technologies, LLC
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(1) Cerevel Therapeutics; (2) Neuraly Rho
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(1) The Michael J Fox Foundation for Parkinson's Research; (2) The Parkinson's Foundation
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- Michael A. Rubin, MD,
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Neurology Today, ethics editorial advisor, 2018-currently, unfunded
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- Barney J. Stern, MD,
1.I serve on the Scientific Advisory Board of the Foundation for Sarcoidosis Research.
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As of July 1, 2017 I receive compensation from the AAN for my role as an Associate Editor of Neurology Today.
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I have received royalties for contributing an article on Neurosarcoidosis to UpToDate.
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I receive partial salary support from the NIH NINDS for my role as medical safety monitor for the CREST2 and SATURN clinical trials.
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- Lynne P. Taylor, MD;
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Neurology Now, Editorial Advisory Board, 2007-present
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Navigating Life with a Brain Tumor, 2012, Neurology Now Books
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- on behalf of the Ethics, Law, and Humanities Committee (a joint committee of the AAN, ANA, and CNS)
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Scientific Advisory Boards:
Scientific Advisory Boards:
- From the Department of Neurology (W.C.), University of California San Francisco; Department of Neurology (B.D.T.), Yale School of Medicine, New Haven, CT; School of Law (R.J.B.), University of Virginia, Charlottesville; Departments of Neurology and Neurosurgery (K.M.B.), University of Florida, Gainesville; Department of Neurology (S.C.-F.), Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso; Departments of Neurology and Pediatrics (L.G.E.), Northwestern University Feinberg School of Medicine, Chicago, IL; Department of Neurology (E.P.G.), Houston Methodist Hospital, TX; Neuroethics Canada and Division of Neurology (J.I.), University of British Columbia, Vancouver, Canada; Departments of Anesthesia & Critical Care, Pediatrics, and Neurology (M.K.), Children's Hospital of Philadelphia, Pennsylvania; Neuroscience Service Line, Inova Health System (D.G.L.), Falls Church, VA; Department of Neurology (S.M.), Duke University, Durham, NC; Departments of Neurology and Neurological Surgery (M.A.R.), University of Texas Southwestern Medical Center, Dallas; Department of Neurology (B.J.S.), Johns Hopkins University, Baltimore, MD; and Departments of Neurology and Neurosurgery (L.P.T.), University of Washington, Seattle.
- Correspondence
Dr. Chiong winston.chiong{at}ucsf.edu
Article usage
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- Robert E. Becker, Psychiatry, clinical pharmacology,, Aristeas Translational Medicine Corporation
Submitted November 23, 2021
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