Abstract
Objective: To determine how young stroke survivors want their unmet needs to be addressed, we undertook an international online survey of people living with stroke.
Methods: Participants self-selected to complete an online survey that included a questionnaire on demographics and stroke-related characteristics, the Young Stroke Needs Screening Tool, and a questionnaire on how they wanted their needs to be met.
Results: 171 responses were received (68% female, mean age 45, IQR = 36,51). Preferences for methods of meeting needs varied depending on the domain of need as well as participants’ demographic and stroke-related characteristics. Face-to-face contact with a healthcare professional was a popular means of meeting needs, but methods outside of a traditional healthcare setting such as a succinct list of tips or peer support were widely acceptable and sometimes preferred.
Conclusion: This work provides the impetus for developing alternative methods of meeting young stroke survivors’ needs, many of which are not resource-intensive nor require an appointment with a healthcare professional.
- © 2021 American Academy of Neurology
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