RT Journal Article
SR Electronic
T1 How do AD patients and their caregivers decide whether to enroll in a clinical trial?
JF Neurology
JO Neurology
FD Lippincott Williams & Wilkins
SP 789
OP 792
DO 10.1212/WNL.56.6.789
VO 56
IS 6
A1 Jason H.T. Karlawish
A1 David Casarett
A1 Jennifer Klocinski
A1 Pamela Sankar
YR 2001
UL http://n.neurology.org/content/56/6/789.abstract
AB To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.