PT  - JOURNAL ARTICLE
AU  - Chiò, A.
AU  - Gauthier, A.
AU  - Vignola, A.
AU  - Calvo, A.
AU  - Ghiglione, P.
AU  - Cavallo, E.
AU  - Terreni, A. A.
AU  - Mutani, R.
TI  - Caregiver time use in ALS
AID  - 10.1212/01.wnl.0000233840.41688.df
DP  - 2006 Sep 12
TA  - Neurology
PG  - 902--904
VI  - 67
IP  - 5
4099  - http://n.neurology.org/content/67/5/902.short
4100  - http://n.neurology.org/content/67/5/902.full
SO  - Neurology2006 Sep 12; 67
AB  - The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.