RT Journal Article
SR Electronic
T1 Caregiver time use in ALS
JF Neurology
JO Neurology
FD Lippincott Williams & Wilkins
SP 902
OP 904
DO 10.1212/01.wnl.0000233840.41688.df
VO 67
IS 5
A1 Chiò, A.
A1 Gauthier, A.
A1 Vignola, A.
A1 Calvo, A.
A1 Ghiglione, P.
A1 Cavallo, E.
A1 Terreni, A. A.
A1 Mutani, R.
YR 2006
UL http://n.neurology.org/content/67/5/902.abstract
AB The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.